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29 Years Old And Desperately In Need Of A Government Disability Grant For RSD

by Heather Martin
(Fullerton, CA, USA)

RSD (Reflex Sympathetic Dystrophy) Of The Right Foot

RSD (Reflex Sympathetic Dystrophy) Of The Right Foot

My name is Heather Martin. I am 29 years old and desperately in need of a government disability grant to help me deal with the excruciating pain of a disabling and incurable nerve disease.

I am totally and permanently disabled for the rest of my life due to a disease called RSD (Reflex Sympathetic Dystrophy). The disease is extremely rare and I am only 1% of RSD patients that have it throughout my entire body, systemic RSD.


I broke my right foot in January 2006 in a freak accident. I was at Angel Stadium in Anaheim, CA, enjoying a baseball game with my friends. When the game was over a 300lb+ man lost his balance and crushed my foot.

This was no ordinary break. My foot was black and burning to the point where you could not come within inches of my foot without me screaming in pain. It was that sensitive. I felt like someone had poured gasoline on my foot and threw a match on it.

I was diagnosed with a hairline fracture on the fifth metatarsal of my right foot. This usually takes 6-8 weeks to heal. Mine took 30 weeks. I was sent from my orthopedist to a pain management doctor because he thought I could have RSD in that foot.

If caught early, within six months, I would have a greater chance of it going away. I was diagnosed in August 2006. I was having lumbar sympathetic blocks every week, being completely anesthetized, and they were only helping for a couple days each time.

By August 2006 the pain had spread into my left foot. This is common in only 25% of RSD patients. We continued the sympathetic blocks and intensive physical therapy. We were getting nowhere fast. By December 2007, I had elected to try a Spinal Cord Stimulator Trial for 10 days. If I liked it, I could then have a permanent one placed.

By the fifth day of the trial, I was in so much pain that I had to have it removed from my spine. Within two weeks of this, the RSD had spread up my trunk area, into my hands, arms, neck, chest, and face. I was in excruciating pain. This happens to less than 1% of RSD patients. So, I had a lot of doctors telling me that it was all in my head and I was devastated.

RSD is considered the most painful nerve disease that you can ever have. My quality of life was completely taken away. I lost a great job as an Office Manager of an aerospace company, and had to pay COBRA for insurance for two years, $400 a month, just to get Social Security benefits.

There is no cure for my disease and I suffer every day, all day. I have had over 200 epidurals/blocks, averaging twice a week. I am on eight different pain, nerve, depression, anxiety, and seizure medications. Sheets cannot even touch my body without me crying. Showers and baths are excruciating. I need help with everything I do. I can no longer drive either.

I live off of Social Security and have two daughters. I will never be able to work again and really wish there was some kind of grant that I could get from the government.

I don't wish for anyone to feel sorry for me, I just want my family to have a decent life, instead of living SS check to SS check. My medical bills are piling up and I know there are procedures out there that I will never be able to afford without assistance.

I have no other options, but to ask for help. Please, if any one is listening, I would appreciate you looking into this matter. I can't imagine the rest of my life like this and I don't want my daughters to suffer. If I don't get better treatment I could be in a wheelchair soon and my body will start to deform. Medicare does not cover many treatments and procedures.

Thanks so much for your care and concern. I hope to hear back soon. I'm counting on there being assistance in the form of government disability grants to help me deal with my RSD.

Comments for 29 Years Old And Desperately In Need Of A Government Disability Grant For RSD

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May 22, 2015
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RSD Crisis
by: SheilaKay Paris

Hi Heather,

I am so so sorry you are enduring such awful pain, and feel for the folks here that have responded to your crisis too. I hope there is research going on to find out the cause and cure for it. I do not have it and have just said a thank you prayer for that.

I'm not sure what you need as far as services but Don has a business associate he endorses, Brian, who also has a passion for anyone disabled. It is also free like Don's. The address is:

Disability Digest

At the bottom of the page click to join. No obligation. He offers help with things like:

Getting Approved For Disability
How To Maximize Your Benefits
How Much You Can Legally Make
Reliable Jobs And Income
How To Find Affordable Housing
Disabled Grants
Financial & Health Care Assistance
Connect With And Learn From Others
All About Veterans Benefits, and
More when you become a member

If you think any of that applies to you, just sign up to gain access. I hope you'll be able (and feel like it) to return here to let us know how you are doing.

Take care and many blessings!

May 19, 2015
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Exact same only mine was a full break
by: Tonya R

I would like to chat with you. I have the same condition only mine was caused by a broken navicular bone in my right foot. Please write back. Let's compare notes. Tonya R.



Oct 29, 2014
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RSD
by: Jose Lopez

You don't have to be alone. I got hurt back in 1998. I'm taking different pain medicines. You should sign up for SSD. I'm getting a little over $800 a month.

Sep 01, 2012
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RSD
by: Theresa Willey

Hi, I am so sorry for what you go through every day. I was diagnosed in 1995. It is a awful disease. It gets really bad. All I can say is depend on God and he will see us through, someway somehow. I wouldn't wish it on my worse enemy. God bless and I will keep you in my prayers. It really i wish I could help you out financially, but I'm in the same shoes your in. And it stinks really bad.

Jul 06, 2012
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Screamer
by: Anonymous

I feel your pain. I injuried my right ankle at work in Jan 2012 and been given the shaft with workers comp. I developed RSD in the right leg in April and it has spread to my entire body in the last 3 weeks.

Jun 13, 2012
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1% club
by: Mainesugarmomma

I had my right ankle crushed in October 2009 by a 300 lb steel door while at work. The pain spread slowly to my left leg and then into both hands and face. My hands feel like they have been shot full of Novocain. Cymbalta made me crazy as did the narcotics. I hope things get better for you.

Oct 20, 2011
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I have RSD
by: Butch

I found a good doctor in the state of NJ who has helped me with my RSD and dealings with the insurance company. If you want information on him let me know and I'll post it here.

Jul 21, 2011
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Waist Down Bilateral RSD
by: Anonymous

I was diagnosed with RSD June 2010. I need the name of a doctor in Southern California that understands it and the level of pain I have, and is not afraid to prescribe the appropriate medication.

Jun 29, 2011
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Tried hypericum?
by: Anonymous

Have you tried Hypericum? It's a homeopathic remedy but has given me some relief and I was even able to go to a music festival on my bad foot. It does dull the pain a lot.

Jun 13, 2011
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Dealing with RSD
by: Anonymous

I have had RSD since I was 16 in my left foot but it is now throughout my body as well. I'm 18 now and I just found out my kidneys are not functioning properly due to my RSD. No doctor or anyone who does not have RSD can say it's all in your mind because it definitely isn't. I was hospitalized for a week with an epidural put in my back. I went in limping and came out on crutches. This didn't help me but with RSD being a guessing game, you could always try it. I know this sounds crazy but the biggest thing is to remind yourself that no matter how bad the pain gets that you're in control of your life so you have to push yourself. I really hope that you find some relief somewhere because RSD is extremely painful. Just remember you're not alone!

Jun 12, 2011
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Pretty new to RSD, myself
by: Red Thunder

From what I see, I have a world of fun waiting for me. I was diagnosed in February, but have been experiencing pain in my legs since December. Anyway, it's nice to meet you all and I pray for you.

Oct 01, 2010
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I have RSD of the entire right side
by: Anonymous

I can give you information about a very liberal doctor that will send Oxycontin without an RX. Post here if interested.

Sep 30, 2010
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I Too Have RSD :(
by: Anonymous

After being struck by a vehicle last year, I was left with a broken talus bone, third degree sprain, post traumatic arthritis, RSD, tendon, ligament and tissue damage in my left foot/leg.

I would love to share with others that are going through the same thing. Please comment here.

Jun 29, 2010
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There IS hope!
by: A fellow RSD survivor

Hi - I am so sorry about the freak accident that led you into RSD. I broke three bones in my ankle while hiking and hitting a rock. It was horribly painful and I have hardware on both sides of my ankle now - since June 2 - 2008! I did get RSD and had a red foot like yours - it felt like being in boiling water- I am ok now. It took more than a year. I forced myself to put weight on the foot. My big toe was in constant spasm up for 3 months - no circulation. Get a good therapist, use a towel, wipe your foot to desensitize it and make yourself put weight on it. Scar tissue builds up just from disuse - I am paying for my own pt and I have lost my job. I feel blessed to be out of pain. Never back to normal but WAY better.

May 12, 2010
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Chiropractic Treatment
by: Anonymous

I suggest you see a chiropractor. They are experts of the neuro-musculo-skeletal system. They offer natural treatment in the form of joint manipulation, traction, neural decompression therapy, lazer, and acupuncture/dry needling. Take all your reports along when you see the DC. Even if medical specialists can't help, a Chiropractor may just surprise you with their expertise. Ask for suggestions and advice. All the best.

Mar 25, 2010
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RSD
by: Anonymous

Hey Heather,

I had this really bad foot pain and they thought it was RSD. But then they got an MRI and saw it was fluid inside my bone. Unfortunately this means I can never run and play soccer, the sport I love. There is a woman who has RSD and gone down the same road you have. She was on mystery diagnosis. If you look up mystery diagnosis RSD, it tells you what you can do and how to handle it. Thanks for your story. Hope you feel better.

Feb 23, 2010
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Finally someone who gets it!!!
by: Ami

Hi Heather,

My name is Ami and I have had R.S.D. since December 17, 2001. I wish you the best honey, because I can truly understand how you feel. Please get with me. I am from Ohio and I would love to talk to you if you would like. Thank you so much and I wish you pain-free days.

Feb 08, 2010
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I'm also RSD.
by: cherly

I've been suffering eight years. I finally had the spinal cord stimulator. It helped, but not 100%.

Jan 10, 2010
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RSD-Info
by: Robert Hinton

Hi Heather,

My name is Robert Hinton. I am 36 and also have full body RSD. I am currently seeing Dr. Robert Schwartzman, in Philadelphia, PA. I wanted to know if you were able to get any grant information or help. I am desperately trying to raise money for ketamine. I am so sorry to hear that you are fighting RSD too. I also have a website about my RSD. I am also on Facebook. I hope you can contact me and I hope you're doing better.

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