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Cerebral Palsy Disabled Wife Will Use Disability Grant For Student Loans

by Lisa Nixon
(Logansport, Indiana, USA)

I am a 46-year-old female that looks at the positive in everything I do in life.

My husband and I have been married for 19 years and will have known each other for 23 years January 24, 2013.

The main highlight of my life is my eight-year-old son. I worked very hard to support him due to a mistake my husband did before I met him.

I have held various positions at multiple jobs before the economy downsized in 2007.

Now, I am currently enrolled at an online college to receive my fifth degree to get back to work.

Disability Issues

I was born by forceps incorrectly at birth, which caused Right Spastic Hemiplegia Cerebral Palsy on a permanent basis.

I have used my left arm constantly that I do not ever remember a time where it has not being used.

I have had four surgeries on my foot to lengthen and stretch the tendons and muscles just to walk as I grew and one on my arm to stretch the spasticity.

I lost my toe movement at age four before I started kindergarten in a public school system.

The first optometrist I went to for glasses said my peripheral vision nerve had been frayed. Now, my left eye is 20/30 and my right eye is 20/70.

My right foot is about one and a half times smaller than my left foot. My right hip is in constant pain every night by the time I finish my day along with scoliosis (curvature of the spine) too.

I fall at least eight times a year for my balance issues. I have a chipped bone in the back of my neck since a fall in 1991.

There is no cure for Cerebral Palsy.

Financial Hardship

I am currently paying rent, heat, utilities, vehicle insurance, gas, food, notebook, and washer/dryer.

I am buying a washer/dryer so I can avoid falling with a basket of laundry in the Laundromat.

This is especially true on ice/snow and driving with slower reaction time of crossing my foot.

I needed another computer to continue college, so we are buying a notebook instead for the cheaper cost. It crashed with my two final projects for college completed. I rebooted using my old computer's utility disk and redid the projects in time.

I do not like it and am worried about how I am going to handle working. It is so slow now. I am unable to go to the chiropractor for realignment as the last time it cost me over $5000.

Only then did I become pregnant for my son. I went six days for four months straight.

My last surgery on my foot was declared a pre-existing condition so I ended paying it out of pocket.

Medicaid denied me to go to a physical therapy to strengthen myself arm/leg surgery while working part time only.

I am on anxiety medication, Celexa (citalopram) for my chemical imbalance in my head for mood control. It is necessary; my husband and I have not fought since I been on it for three years.

My glasses are more expensive since my eye is getting worse. I find certain things needed by trial by error.

I need to get Adipex diet aid so I can control my weight. It is getting harder to get around and I worry about breaking my arm or not being able to get up the next time I fall as I am getting older.

We had to get rid of our running vehicle for money issues this month so we are temporarily on foot. We chose food for our son.

There are bills that I owe and I'm still unable to pay right now. I know I owe it and want to but need to get back to work.

Income Efforts

My mom was trying to help me, but financially she had to cut back on her hours so she did not have to continue to pay back Social Security on her retirement.

My dad has nothing to do with me and my sister was diagnosed with MS so she has her own issues and employment instability.

I have a Pell Grant for college and I had to take out other loans to pay for it.

I took payday loans to buy food but since the bank did not cash a money order for $700 for two weeks; my credit has suffered and unable to get a $6000 to consolidate my debt to one payment. Then, I could afford to live off my only income.

I am currently on SSDI until I can finish college and find employment again. My State says I earned too much money on SSDI to receive benefits for Temporary Assistance for Needy Families (TANF) and Food Stamps.

They gave me Medical Medicaid but with a $210 spend down per month, it does not cover doctor visits or my medications so I owe them out of pocket.

My son is covered but my husband is not insured. My income pays for most of my bills but then we are out of money for three weeks of the month for food.

We go to our local food bank but that is for about three days. We don't own mp3 players, iPods, cell phones or cable. We have a cell phone that my in-laws pay for so many minutes per month.

My husband is doing all the housework until he can find employment. It is role reversal for us. He does all the cooking so I won't burn my hand and need Home Health Care workers.

Specific Needs

I seek any help that I can qualify for. I could use grants to pay off my student loans and benefits in any way.

I could do with a loan of $6000 to pay off my debts and to clean up my credit so finding a position is easier to find than how it looks now.

Any assistance will be appreciated though.

Business Idea

I received a post card in the mail about doing contractor work as a Government Insurance Refund Processor at home. But I would need to get their packet for $3.91.

I would also need a business phone line and headphones to type one-handed. Eventually, I would buy a Dragon Naturally Speaking where you talk and it types for you.

I would need printer cartridges for my Kodak printer and/or purchase an online fax. I would purchase antivirus/spyware software and a computer (not a Notebook) to input client's information into their database.

The monthly client list to contact is $39.99 a month subscription fee.

I have worked multiple jobs at once so I will still continue college in case this ends so I have a backup plan.

I like the idea of working from home so I am there for my son's time off school without paying for a daycare too. I don't sit around feeling sorry for myself but want to be able to afford my needs and wants of life too.

Comments for Cerebral Palsy Disabled Wife Will Use Disability Grant For Student Loans

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Feb 11, 2013
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This might help
by: Kim Hubbard

This might be a resource for your unmet medical needs:

http://www.needymeds.org

God bless!

Dec 28, 2012
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Surely There's More
by: Claudy

Lisa,

You impress me because I have a first-hand idea of the challenges you face on a daily basis. I see where you had to pay for medications. A lot of times in that situation another agency or foundation will pay. The problem is knowing where to find that help.

Do not delay obtaining your big picture from benefits.gov of all the help you can receive. I know without any doubt there is a lot of help you are not aware of. Benefits.gov will give you all the need information for accessing that help. You are going to be surprised. There is going to be help for problems you didn't even mention. It is a great resource.

http://www.benefits.gov/

Finally your declaration of love for your husband sounded great. Obviously you two have been together many years which means the love you have is real. Since your love has gotten you this far, it will take you the rest of the way. I get it! I knew it!

There is much help available and I want you to get it. You deserve it and you are why it's there. Now you know.

Let us know what happens because there are people that have read your story and are interested. Your story is going to have a happy ending.

You're going to be busy with all the new information but don't forget to let us know. Till then, bye for now.

Dec 27, 2012
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Wife in Need
by: Lisa

I accepted my husband the way he was when I met him. Unfortunately, companies and temporary agencies don't overlook the mistake for him to get back to work in certain locations where we are currently living. This I have accepted but it still does not put food on the table when we need it. He is my rock that stood by me through good and bad times without my medication. He accepted me fully for me as me. Thank you for the website.

Dec 26, 2012
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Make Sure You Get What You're Due
by: Claudy

I'm not sure you are getting all the help you and your family qualify for! It seems to me you would qualify for many programs and services but you're just not aware of how to access the help.

To be sure, go to benefits.gov and take the statistical survey. It is quite lengthy but simple and confidential. After you answer all the questions a computerized list is made specific to your answers and needs. It is complete with addresses and contact information. I'm sure you will be amazed about all the help you didn't realize was available. Benefits.gov just recently added a video link to explain everything if needed but I'm confident you'll have no trouble. Have your husband take the survey also just in case he qualified for.something that you did not.

You can print the list or email it to yourself because it will be quite long and takes some time to access everything. You're going to be busy.

In my state the disabled get free college education... I'm just sure you are not getting all the help you can.

Finally I must say I didn't like the way you mention a mistake your husband made many years ago! Maybe it is time you let that go because it sounds terrible to me after many years you are still focused on it. That can't be good for him or you after this many years. You never mention what the mistake was and I'm glad you didn't.

I do respect all that you have accomplished and am impressed with your determination to succeed and you will.

I hope and wish for a mountain of luck to come to you and your family real soon. I know it is now.

Take care and make the New Year 2013 your best year yet. Bye for now...

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