CMT Disabled Former Truck Driver Seeks Government Education Grant
by Michael A. Deville
(Olla, LA, USA)
My name is Michael Deville. I drove an 18-wheeler for 16 years. I am now unable to drive.
I have two children, a fiancée and two stepchildren. I am 36 years old.
I was born with a hereditary neurological disease called Charcot-Marie-Tooth disease (CMT).
This disease is a progressive neurological deterioration of the protective sheath that acts as an insulator around the nerve itself.
As the nerve dies the brain is no longer able to send electrical impulses to the muscle tissue. Muscle tissue is the only tissue in the body that will die when not used.
The effects are in my lower extremities, feet and ankles. The result is my inability to effectively control the position of my feet while standing, thus rendering me immobile without the aide of a wheelchair.
I am on a fixed income and trying to raise a family. I am unable to afford the surgical procedures needed to regain, to some extent, my mobility.
At home, I rely on my wheelchair to get around, and crawling on my hands and knees. My apartment is small making it hard to use my chair at all times.
I am unable to work as of yet. I can't afford the tuition to go back to school, which would enable me to work from home.
Transportation is difficult due to the need to transport my wheelchair anywhere I go.
My medications are affordable due to my Medicare insurance, but they are merely a temporary measure of relief, as my condition will worsen with the passage of time.
I receive SSDI benefits. I have no other source of income. It is hard to get a job when you can't walk.
I am looking for grants or donations to help finance the tuition for Freight Agent Training.
This is a field that due to my career of driving an 18-wheeler I have a lot of experience in.
I am also seeking grants or donations to assist me with the deductibles that my insurance doesn't cover so that I can have surgery on my left ankle, right ankle, and lower back in an effort to correct, as best I can my mobility issues.