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CMT Disabled Former Truck Driver Seeks Government Education Grant

by Michael A. Deville
(Olla, LA, USA)

My name is Michael Deville. I drove an 18-wheeler for 16 years. I am now unable to drive.

I have two children, a fiancée and two stepchildren. I am 36 years old.

Disability Issues

I was born with a hereditary neurological disease called Charcot-Marie-Tooth disease (CMT).

This disease is a progressive neurological deterioration of the protective sheath that acts as an insulator around the nerve itself.

As the nerve dies the brain is no longer able to send electrical impulses to the muscle tissue. Muscle tissue is the only tissue in the body that will die when not used.

The effects are in my lower extremities, feet and ankles. The result is my inability to effectively control the position of my feet while standing, thus rendering me immobile without the aide of a wheelchair.

Financial Hardship

I am on a fixed income and trying to raise a family. I am unable to afford the surgical procedures needed to regain, to some extent, my mobility.

At home, I rely on my wheelchair to get around, and crawling on my hands and knees. My apartment is small making it hard to use my chair at all times.

I am unable to work as of yet. I can't afford the tuition to go back to school, which would enable me to work from home.

Transportation is difficult due to the need to transport my wheelchair anywhere I go.

My medications are affordable due to my Medicare insurance, but they are merely a temporary measure of relief, as my condition will worsen with the passage of time.

Earning Efforts

I receive SSDI benefits. I have no other source of income. It is hard to get a job when you can't walk.

Specific Needs

I am looking for grants or donations to help finance the tuition for Freight Agent Training.

This is a field that due to my career of driving an 18-wheeler I have a lot of experience in.

I am also seeking grants or donations to assist me with the deductibles that my insurance doesn't cover so that I can have surgery on my left ankle, right ankle, and lower back in an effort to correct, as best I can my mobility issues.

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Dec 28, 2014
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He is awesome
by: Tywana

Thank you! I made a website for him if you would like to visit it!

www.virtual-memorials.com/main.php?action=view&mem_id=25311

Michael was and is so amazing! And I give God all the Glory for Michael being on the straight path to God!! :)

And of all things, Michael passed away from double pneumonia!

Dec 27, 2014
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Deepest sympathy...
by: Don from Ability-Mission.org

Sorry to hear about your husband passing away before he could get the surgeries.

With deepest sympathy,
Don Coggan

Dec 27, 2014
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My husband...
by: Anonymous

Sadly my husband passed away Jan 10, 2014. He never got to start the surgeries that he worked so hard to save up for!

Oct 29, 2012
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Ken
by: Anonymous

Thanks Ken for your feedback. I take Gabapentin as well. As you stated, the benefits are limited. I will do some research on B-12. I will find a way to be a productive member of society again, I can't stand not working.

Oct 29, 2012
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Vitamins
by: Ken

Hi Michael,

Strange things nerves are! Do you take vitamin B12? I have peripheral neuropathy and B12 has some benefits. I also take Gabapentin for it, but it has limited use. Are some days better than others? The myelin sheath can repair itself, but not very quickly. Hopefully yours will get better soon, you are still quite young. The government knows the situation you are in and that what you are looking for is needed. There are a lot of trucks rolling on the highways, but someone has to know where they have to go! Try going onto this site Michael:

http://www.dol.gov/

You may have to look around in here for a little while, but just at a glance, it looks pretty good!

Good Luck,
Ken

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