Disability Grant For Cerebral Palsy Disabled Terrie To Get Accessible Van
by Terrie Birney
(Swansboro, NC, USA)
I'm a 44-year-old woman living in a small town in North Carolina. A country girl, I've been married to a wonderful man for 20 years. I have wonderful family support.
I volunteer at my church as communication coordinator, doing our weekly bulletin, monthly newsletter and our website.
I love to write, especially about my feelings. The book series "Chicken Soup for the Soul" published one of my stories.
I was born with cerebral palsy. I am not able to walk or talk. I use sign language to communicate.
I have to depend on someone for everything, even to go to the bathroom and to eat.
In August 2012, I had hip surgery; they removed both of my hips. That surgery worsened me instead of making me better.
I have a feeding tube since 2001 because food would go straight to my lungs and I used to get pneumonia often.
I had to have partial hysterectomy in 1989 because my legs were too tight together for my monthly menstrual cycle.Financial Hardship
My husband has to work to support both of us on his own. Then, he has to come home from work and take care of me.
I cannot receive SSI or any help from government because they have guidelines that I don't meet. According to their guidelines, my husband's income is too much.
They don't take into account that we have necessities such as housing, food and other bills.
Our mortgage is extremely high. Sometimes, we can't pay all of it.
We also have to pay some of my husband's medical bills.
Accessible vans are very expensive and I need a good, reliable one.Income Efforts
I got my associate degree in microcomputer science in 1994, and then I applied for some computer jobs. One interviewer even changed the job description to the night shift, so I would not have transportation to work (my nurse's aide worked only in the daytime).
I applied for SSI many times and I got denied. However, I didn't stop there to try getting SSI; I went to see a lawyer. Unfortunately, there was nothing that the lawyer could do to get me any help.
My church and family donated to me what they could.Specific Needs
I need an accessible van to go to my doctor's appointments, do my volunteer work for my church, do my grocery shopping and go visiting family and friends.
I need a low floor minivan so it would be easier for other people to drive it than a big conventional van.
I would like to start receiving SSI or any financial help monthly.
I would like to be able to work from home and get paid for it.