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Disability Grant For MS Disabled Karen To Buy Home And Make Accessible

by Karen Paese
(Marion, Ohio. USA)

With my partner

With my partner

With my partner During a flare-up My dog happy to see me With my mom

I am a 43-year-old female with no children. I live with my partner, two dogs (one we rescued), a cat and fish. They are our kids and we treat them as such.

We rent from my partner's parents. It causes tension at times but the rent is affordable here right now.

I worked in management for over 17 years and loved it. One day I would love to have a nonprofit to help those in need.


Disability Issues

I was diagnosed with multiple sclerosis in September 2012. My disease is so progressive that by November 2012 I was in a wheelchair.

I went from working crazy amounts of hours to not being allowed to work at all.

This illness takes almost everything from me including not being able to think or remember things, not being able to walk, not being able to speak.

I can't play sports, which I absolutely love, and much more. I go from getting stronger to not being able to use my legs the next day.

I have yet to allow my disease to bring me down. It has allowed me to help others with MS.

I have been in physical, occupational, and speech therapy for two years and eight months now.

Financial Hardship

I am on SSD and SSI, which is why I need help getting a handicap accessible home or buying the home we are in and making it accessible.

I also need help getting a Hoveround. I have a scooter but it is run down and does not make corners or turn around like the other ones.

We really want to get help buying the home we are in and making it accessible because the bathroom already is.

Plus, her parents will not charge us as much as buying from a stranger.

Income Efforts

I have asked for help from my Ohio Waiver program but a loan is not something they help with.

I have tried to take loans out from a couple of friends and even asked our church for help. It seems like everyone is in the same position as I am.

My partner works taking care of me. She makes minimum wage doing it but deserves so much more.

She gets paid for 56 hours a week no matter how many hours she actually works. Our budget is stretched to the limit.

Specific Needs

What I am seeking is a grant to help buy the house we're in and the cost of making it handicap accessible.

This house was my partner's grandmother's home so we would like to stay here. However, if we have to move because someone has an accessible home to offer then we are willing to do that as well.

I am a positive person but sometimes not being able to get around my home makes it difficult.

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Apr 28, 2015
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SheilKay Paris
by: Karen Paese

Thank you SheilaKay for your comment. I didn't get my scooter through any type of insurance. I've always tried to be independent and now I need to ask for help.

The support group here turned out to be one person talking and everyone else listening. I use my friends and partner for support.

Thank you so much for your comment. I appreciate all you said to me! Have a great day.

Apr 28, 2015
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Welcome to the Workbook phase
by: Don from Ability Mission

Hi Karen,

We're very happy to help. If you know of others that could benefit, this is your chance to do a good deed!

Best,
Don Coggan

Apr 28, 2015
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Thank you
by: Karen Paese

Thank you for publishing my page. This is incredible!

Apr 28, 2015
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Praying for You
by: SheilaKay Paris

Hi Karen,

Wow, you got symptoms so quickly! In just 2 months of the diagnosis to a wheelchair. I am so sorry you and your partner are going through this. I know how devastating MS can be. Not from my own experience, but I have a dear friend with MS.

I can relate to the immobility issues though. I, too, am in a wheelchair. It seems like one can take about anything, but take away the ability to walk and get around, well that's a hardship to the max.

You say you have a scooter. Was that paid for by Medicare or a gov't source? I see you are 43 so I don't know about other sources. I just know if you got it through Medicare (or maybe even Medicaid) you get it for 5 years before you can exchange it for another.

I'm probably being confusing, but let me tell you how I got my Hoveround you are asking about. I had to get a prescription from my doctor. I had to make a special 45 min separate appt with him to evaluate my need and fill in tons of forms. He sent it to Hoveround, they sent it to Medicare and I was approved.

I know that after 5 years I can get a new one, or a different type/brand/model, etc. You may want to check into other brands. I didn't. For me it's very dangerous. I have hurt myself several times: nearly ripped 2 fingers off, squashed my hand on the cabinets causing a bad wound, ran over my toe, knocked me down and drug me 6 feet. Ha! It has extremely strong horsepower. The clearance at the bottom is quite 'tight'. But it's dependable and strong and will go through just about any obstacle if it can clear it

Is there a MS support group in your area? If so, I hope you can attend.

In my area here in Spokane, they offer what's called a ParaTransit program. It's like the general bus system, but it's for us disabled folks. They come to your door, help you with your wheelchair, scooter, Hoveround, or whatever, bring it with you. They take you to your doctor appts, grocery shopping, art classes... wherever you'd like to go, including your partner. I can bring my daughter as she acts as my caregiver, and she rides free. The round trip is minimal, something like $3. I had to go downtown (they provided the transportation), go through some testing, and got approved.

If there is a social worker available with the PT, OT and Speech Tx you get, make use of her. She'll know what you need and how to get it. I don't know if you live in the city or in a rural area. If rural, you're in luck. Rural Resources offers tons of services.

Plus there are groups that will get together and build ramps for those who need them, So even if folks can't pay for it, like your church, there could be folks in your church that can bring their hammers and scrap wood to get it done for you.

Anyway, I didn't mean to write a book, but I am praying for you and hope you get everything you need and deserve. Get into Don's workbook. It's invaluable and will steer you in the right direction.

If you have any other concerns, please write me at SheilaKayParis(at)gmail.com. I'll be happy to listen, offer my experience, and also offer some other programs I am aware of that could be of great help.

God bless,

SKParis

Apr 28, 2015
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Ready for the Workbook?
by: Don from Ability Mission

Hey Karen,

You are now ready to move on to the Workbook stage of the process.

Best,
Don Coggan

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