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Disability Grant For Myositis Disabled Michael To Buy Single Story Home

by Michael McKeown
(Meadville, Pennsylvania, USA)

My name is Michael and I am 45 years old. My wife Michelle and I have two boys ages 13 and 12. We have a small home in northwest Pennsylvania.

My wife is a first grade teacher at the Christian school that my kids attend. I enjoy spending my free time gardening and singing in a southern gospel quartet.


Disability Issues

In 2009, after breaking my arm I noticed that my grip had not come back in my hand as I thought it should.

Later, I began to notice that it was becoming increasingly difficult to climb stairs. By 2012, I was crawling with hands and feet to climb stairs.

Since I did not have insurance I did not go to a doctor and get it checked. By 2013, my wife finally told me to get it checked even if we had to pay out of pocket.

After a muscle biopsy, it was determined that I had developed Inclusion Body Myositis. This disease is characterized by a weakening and wasting of skeletal muscles in the arms and legs.

My neurologist tells me that each year my muscle loss will be greater and that I will be in a wheelchair within 15 years. There is no treatment and there is no cure.

Financial Hardship

Money has always been tight. We live paycheck-to-paycheck, setting money aside for emergencies if and when we can.

We keep our expenses to a minimum, but money is still very tight. Because of our low income, school bills have been deferred several times.

Income Efforts

I am currently receiving SSDI assistance.

My wife also works as a tutor in the summers to pick up a little more money.

I work as much as I am able as a mental health counselor, but not enough to adequately provide for the family.

I learned to design floral arrangement many years ago and have recently been going to craft shows with my arrangements to try to make extra money.

As I slowly become worse, it becomes more difficult to set up tables and display arrangements without help.

Specific Needs

What we really need is a house that is on one level. Since stairs are a major issue for me, the house that we are in is no longer suiting our changing needs.

I am looking for home buying grants, benefits and advice that will lead me to the next right step towards meeting the challenges that are in front of us.

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Aug 18, 2015
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Muscles
by: Sheila

Hi Michael,

I'm so sorry to hear of your diagnosis. Losing your muscular strength must be awful. Although I cannot get upstairs either without help I can easily understand. Mine is due to no cartilage left in my hip joints. But I was able to get a chairlift that works on battery. Is there any way perhaps you could get a donation (around $3,000) for one of those, community? church? friends?

There may be help in Don's Workbook, also in his associate's website, also free, and has resources:

http://www.ability-mission.org/ddskp

This is another site that has tons of resources so while you are working on Don's Workbook you can check out this site also.

Keep us posted on how you are doing.

Blessings!

Aug 14, 2015
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On to the Workbook
by: Don from Ability Mission

Michael,

Good job of your story! Now you need to get the Workbook, which shows you how to use your story to get the help you need.

Best,
Don Coggan

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