Disability Grant Money To Help Disabled Woman Get Third Kidney Transplant
by Angelique McBride
(Lake Elsinore, California, USA)
I am a 37-year-old woman living at home with my mother and father in Lake Elsinore California.
I have never been married and do not have any children. I love my nieces very much. They are kind of like my surrogate kids.
I have an active life with lots of friends, I try to keep myself busy with volunteering and friends and family.
I have just moved back from living in Hawaii for four years, which I absolutely loved, and would go back if I could. Maybe one day!
I have worked off and on for the last 16 years as a medical assistant/phlebotomist. I love my job and working with and helping people.
When I was 17, I was diagnosed with a severe form of Lupus called Systemic Lupus Erythematosus with Nephritis.
My symptoms were fever of 105 degrees, extreme weight loss, nausea and vomiting for two weeks straight.
I was dying from kidney failure before the doctors figured out to test me for lupus.
Being that I was as young as I was and I really had never heard of the disease before, I was scared. I thought I was going to die. So did my parents.
This was in the early 90s. When I was 21, my kidneys finally failed and I went on peritoneal dialysis that lasted over two years.
Then my twin brother gave me one of his kidneys and I was transplanted at 24 years old.
The kidney I received lasted 18 months and then I went on dialysis again for the second time at age 26.
I went on a waiting list for another transplant. I received a cadaverous transplant in 2005. It lasted about five years.
In 2009 during that time my Lupus became active again and attacked my heart causing pericardia.
It also attacked my lungs at the same time causing pleurisy and pneumonias.
I needed to try to save the transplanted kidney by doing plasmapheresis treatments and thymoglobulin treatments. They were unsuccessful.
I went into the hospital for about two months at the end of the year. I had to have an emergency nephrectomy to take out the transplanted kidney because it was hemorrhaging.
Eventually I was able to leave the hospital.
Some months later, I was back in the hospital with numerous other complications. I had embolisms in both lungs and needed to be treated for that as well as congestive heart failure.
I have been in and out of the hospital ever since, never fully recovering from all the different disabilities I have had to endure.
Now in 2013, my lupus is active again and causing severe rheumatoid arthritis throughout my whole body, and I am currently being treated for the many complications due to being on dialysis.
I am hopeful to be able to go on the waiting list for another transplant.
Due to the many hospital stays and the lack of insurance, I am now in debt for the two-month hospital stay as well as some of the other treatments I had received in the past for the treatment of the kidney and the removal of the kidney.
The treatments I received in San Diego for the plasmapheresis came to over $10,000. Due to the fact that I lived in Hawaii and was sent to my original transplant team in San Diego to do these treatments, there was a significant out-of-pocket cost.
And at the end of the year when I was in the hospital for two months there were issues with the insurance carrier that I had at the time. They refused to pay the hospital bill, which came out to roughly $500,000.
I also have other hospital stays and doctor appointment bills as well as many different medication bills that I am unable to pay for. I don't want to go into bankruptcy.
I have done that once before when I was too sick to pay for other bills in the past and it took 11 years for that to clear.
I would just like to take care of all that I need to in order to live on my own independently, own my own house, own my own car and have a simple life.
I am currently receiving Social Security Disability Income.
I am also receiving food stamps.
I have worked off and on over the years in the medical field, but currently I am not in a healthy enough condition to sustain a job.
I am a subcontractor but have not been accepting any work as of right now due to my health situation.
My family does support my needs, but is in no position to do much more. They are able to help with some of the smaller things like gas for my car and maintenance.
What I hope to gain from all this is sound advice as well as obtaining a disability grant.
I have never gone through this process before, and have not been in a situation where living independently is almost unattainable for me.
I would like to leave this experience with having dignity again.