Disability Grant To Help Huntington Disabled Man Live Meaningful Life
by William Thomas
(Valparaiso, Indiana, USA)
I am a 33-year-old male. I have one younger sister and an older brother. I currently see them very often now as they are my most important support network, along with my father.
I am enjoying every day now more than ever. My goal is to find the woman who will be my wife in the next two years.
I want a family more than anything, but that reality is contingent on several issues, out of my control at the moment.
I was diagnosed with Huntington's disease in June of 2012. I was predisposed genetically to acquire the disease because my mother had it and passed away at a young age from it.
The odds of the disease developing in offspring of a parent with this disease are supposed to be 50%.
In my mother's family all her siblings developed it. Unfortunately, for my sister and myself, the odds were no less off with regard to our throw of the genetic dice.
There is a spectrum of how quickly the disease progresses and in my case, I have suffered a quick progression of symptoms.
I am currently 100% disabled because of the loss of my balance, coordination and ability to speak clearly.
I got a job as an apprentice to a machine shop right out of high school and moved up to full machinist in a short time.
I have been employed for 14 years and I love working with metal. I love cutting it, shaping it, manipulating it to make products people need and want.
Recently the symptoms of my disease began to get so bad that I no longer have a steady gait and my hands shake too much to bring the necessary precision to the job that is required.
I was let go in late May of last year and have applied for Social Security Disability and state level help.
I have applied to the other area machine shops. I get the impression as soon as I walk in to try to explain myself the human resources can tell by my loss of gait and communication deficits that I am a safety hazard.
I have resolved that I will not work in a machine shop until modern medicine can correct the extra-synaptic firing in my brain caused by this disease.
I did receive unemployment benefits right after I lost my job.
I have had to rely on my family to make small loans to bridge the gap in expenses due to the loss of income.
I applied right away for Social Security Disability.
My unemployment ran out in January of 2013.
I have been forced to sell anything I can live without and now have just the bare necessities.
I have sent letters out to grant organizations in a book I bought authored by Kevin Trudeau. I received no responses.
The latest silver lining was that I received my first check from Social Security. It is less than half of what I made when employed.
I am seeking any grant that will provide relief from all the medical bills that are quickly mounting.
I would like to be able to hire an aide to help me with cooking, cleaning and general chores. I fear I will lose my ability to drive soon.
More than anything, I would like a grant to get back my furniture and all the things I worked so hard for.
I know this is probably a lot to ask from strangers, but I really have lost everything so quickly I don't know where to turn.
The prognosis for Huntington's is so grim in all the literature and my research.
I know if I can get to a point where I am stable again I will not give up on life.
I really hope this work reaches someone who knows enough about grants that can make a difference in my life.