Disability Grants For MS Disabled Jacqui To Improve Life And Earn Income
by Jacqui Porter
(Salt Lake City, UT, USA)
My name is Jacqui and I am a 52-year-old woman. I am married to the love of my life, an Air Force Veteran, Keith. We have no children but I do have a beautiful Greater Swiss Mountain Dog named Willow.
Jacqui With Beloved Hubby Keith
I was born in California but grew up in Eastern Washington. I have always loved to travel the US and meet new people and see new places.Disability Issues
My mother was diagnosed with Multiple Sclerosis in 1980. When she and my dad told us kids about it the first thing I thought was OH NO, this is going to happen to me. They assured me it wouldn't and couldn't because that is what they were told.
Well, in the early 1990s I started having a lot of the same issues and symptoms that my mother had but was unable to obtain medical treatment because I did not have insurance at the time. After about four years the symptoms abated and I didn't think anything more of it.
Then about 2009 my symptoms began reoccurring. It took three more years before I was able to get a doctor to listen to me and run the necessary tests to see what was going on.
I received my official diagnosis of Multiple Sclerosis March 10, 2012. I assumed that I would go on medication and things would go on as before with my disease going into remission.
Unfortunately that is not the case. My Multiple Sclerosis has continued to get worse and I am no longer recovering back to my Pre-MS days. My doctor has told me I am transitioning from Remitting/Relapsing to Secondary Progressive.
The issues I have with my Multiple Sclerosis are pain, debilitating fatigue, spasticity in my legs but worse in the left leg, blurry vision, brain fog, tripping, falling, dropping items and memory issues. My paper planner has become my best friend.
In addition to my Multiple Sclerosis I also have diabetes, arthritis, high blood pressure, and lipodermatosclerosis in both legs. My husband is also diabetic, has high blood pressure and high cholesterol. In addition to that he suffers from diabetic neuropathy.
It is so frustrating to have my disease force limitations on what I can do.
Our disabilities are sinking us financially. I am still employed full-time but that will not continue for a lot longer. I am hoping that I can make it till November.
My doctors are very surprised that I am still working with my level of disability. The problem is my husband and I don't make a lot of money and with our health issues we never seem to have any extra.
In addition my work has been making noises about maybe having to let me go because I can no longer meet quotas even with accommodations.
On any given day I have to use a cane, walker, scooter or wheelchair to get around. The biggest issue with that is we live in a tiny apartment and I cannot use anything except the cane in the home.
The wheelchair is currently useless; it will not fit through the door or in the back of the van. We had to assemble it in the apartment.
Going grocery shopping is pure torture because it is so hard and painful to walk. I never know when my legs will decide to quit working.
I do have a van but I need to get a lift so that I can transport a mobility scooter. I need to get a scooter to use when I am out grocery shopping, walking the dog and doing other things.
We are also trying to have a handicap accessible home built. I am worried when I lose my job we won't be able to keep the home or have it finished (I will only make about $900 a month on SSDI when I get approved).
The home is not fancy and it is not large but my wheelchair would be useable in all rooms of the home. I am also in the process of training my dog Willow to be my service dog. That costs a lot of money and I have run out.Income Efforts
I have always had to work 2-5 jobs to make ends meet. So currently I am working full-time and I do genealogy and family history for people on the side.
I have also begun teaching basic pistol classes.
In addition I edit books and build word search puzzles and crossword puzzles for people.
I did have a "Go Fund Me" site for a while to raise money for my service dog and that brought in some money. I was able to get the dog and begin her training.
We have also had to go to our church for help with food several times over the last couple of years.Specific Needs
I am looking for grants and job opportunities that will allow me to work from home on my own schedule.
I am also looking for funding for a mobility scooter and lift.
Grants for helping with making the home accessible would be great too. I am willing to work for this money.
I would even be willing to do an exchange of services for the money or items. I don't want a hand out, just a hand up.Business Idea
I would really like to be able to take Genealogy classes so that I can become a professional genealogist, able to make $80+ an hour instead of $10 an hour.
That class would require about $2000, which I don't have. And because I would not be a full-time student, I am not eligible for financial aid and cannot afford school loans.
I would like to get more training in the use of handguns for self-defense when you are disabled. I then want to take that training and teach others with disabilities how to even the playing field and protect themselves and their loved ones.
As an instructor of these classes I would be able to make $80+ an hour and be able to help others.