Disability Grants To Help MS Disabled Alexus Get Accessible Vehicle And Housing
by Alexus Bergen
(Springfield, Illinois, USA)
I am a 20-year-old female. The only family I really have anymore is my fiancé and seven-month-old daughter.
MS Disabled Alexus Bergen Seeking Accessible Vehicle And Housing
The home I live in is not handicap accessible but I manage. I am a stay-at-home mother to my daughter.
I cannot work due to my disability, so my fiancé is the one that has to work for the biweekly income.Disability Issues
I was diagnosed in January 2015 at the age of 18 with Multiple Sclerosis. My disability started affecting me two years before I was ever diagnosed and my spinal fluid showed signs four years before I was diagnosed.
The Multiple Sclerosis was triggered after years of abuse from my biological father when he had thrown me across a room in summer 2013.
I receive $735 a month from SSI.
I haven't ever been told what kind of Multiple Sclerosis I have even when I have asked the doctor himself. Over the last two years my disability has exceedingly progressed.
I was prescribed four medications when I was diagnosed and was taken off all medications nine months later in October because I had found out I was five weeks pregnant.
While pregnant I went into remission due to extra hormone production. I gave birth in June 2016 to a healthy baby girl. I was put back on medication two weeks later.
Two weeks after giving birth I was struck with worse debilitation than before pregnancy.
Because of the progression I am now in a wheelchair 95% of the time. I am also in physical therapy to help loosen my muscles but it only makes me hurt even worse.
I am now on five prescription medications. I have to take one two times a day; while two others I have to take three times a day.
To start with I make $735 a month. I am still waiting for a decision from the Illinois Department of Public Health (IDPH) on my food stamps. The bills my fiancé and I face each month are as follows:
1. Rent - $525 monthly
2. Electric - $205 monthly (current bill)
3. Internet - $90 monthly
4. Storage - $50 monthly
5. Phones - $100 monthly
6. Car Insurance - $267 monthly
7. My schooling - $49 monthly
Total bills = $1286 monthly
Before my daughter was born, I was saving up money to get a place for her, my fiancé and myself because at the time I was living with my parents and stepbrother.
I had almost $700 saved up and then my daughter was born and all of the money I had saved up was gone. I had never realized how expensive babies were.
My fiancé and I share the bills equally but, it takes almost every penny we have to pay the bills and the money that is left over goes towards food and the baby.
The home I live in now is not handicap accessible, but I have some accessible equipment such as a wheelchair, two walkers and a transfer bench shower seat.Income Efforts
Right before I was diagnosed, I had dropped out of high school to get a job to help pay bills at the place I was living at the time.
Not even a month after I had done that I found out I had Multiple Sclerosis and couldn't work.
I receive SSI benefits and have been since August of 2015.
I haven't been able to receive any help from friends, family or churches
I have contacted some organizations to get grant help, but for the most part, I ended up getting the runaround.
I have been trying to find a work-at-home job but I haven't had any luck.Specific Needs
I need any kind of grant that I am eligible for.
I also need a handicap accessible vehicle so I can get to doctors' appointments and even to the grocery store more comfortably.
I also need housing that is single-level and handicap-accessible. For this, I cannot go through the housing authority due to my fiancé not being able to pass the background check because of problems in his past.
I do not need anyone's sympathy because I have accepted the fact that I am disabled and it is just a part of my life that I have to deal with until I pass.
So in summary, I need to get an accessible vehicle and accessible housing.