Header for Ability Mission

Government Disability Grant To Help Mother With SBS Disabled Baby

by Kristina
(Ft. Covington, New York, USA)

I am a 24-year-old woman who has two beautiful children: a four-year-old daughter and a one-year-old.

In 2008, my baby boy came into this world. At the age of 5 months his life came to an end on May 20th and the world also came to an end for my family and me.

I was at work when I received a call that my son had quit breathing and was rushed to the nearest hospital. I was told when I had arrived at the hospital that my son had died twice and during one of the times he died he had a severe stroke to his brain.

When I finally got to see my son he was as pale as a ghost and was having repetitive seizures and was hooked to a respirator to help him breath.

All I could hear was the shrieking sound of his voice trying to cry and a little tear running down his cheek when he tried to look up at me.

When all this had happened the doctor asked me and his father who was sitting him at the time to leave the room that they had to work on him to keep him breathing.

So we stepped out. I thought I was going to die right then and there so I held the only person who was my closest friend for seven years -- their father.

Then the doctors came out and told me that he had to be shipped by helicopter to a bigger hospital that specialized in strokes.

We were not allowed to ride with him because there was no room, so we drove by truck three hours away.

When we finally got there, I asked to see my son. They said he was in surgery because he had a large amount of blood on his brain, a subdural hematoma.

They had to do a left sided craniotomy so we waited and remained clueless as to what had happened. The police showed up and questioned his father.

Finally, after an hour of waiting they came out and were escorting the father out of the building. They told me to sit down because they had to tell me something.

It was not good news. They told me my son had suffered SBS (shaken baby syndrome) when I was at work and that the father had admitted doing it.

I was in tears, not just because the father did this to my son, but that they told me my son was going to die from this.

I waited patiently all night by my son's side while on a respirator and the doctor told me he had the blood taken off his brain but there was a large amount of damage and they said it didn't look good for him to talk walk or anything ever again.

I lay by his side looking at my five-month-old baby with his head the size of a football and 34 staples in his head from the surgery and he was still on the respirator.

He spent a whole week that way till they decided to slowly take him off the respirator. He did fine.

We were there at that hospital three months because his brain kept bleeding. They had to keep doing surgery (three times) to get blood off his brain.

They did three spinal taps on his little back and I don't remember how many needles they poked him with. There were so many.

It hurt me to see him crying every day and I couldn't do anything to help him. He finally left that hospital and went to another hospital for rehab therapy.

He was there two more months and also had one surgery to get blood off his head again. He is now at home again and is on seizure medications and has to wear a helmet to protect his head because of his craniotomy.

They hope his brain will re-expand because it had shrunk because the stroke caused a lot of his tissue in his brain to die.

To this day doctors say it doesn't look good for him. He holds his head up but for a few seconds and says mama and nanny. He doesn't walk giggle or play.

I hope this letter really helps my family get what we need for Ethan. We ask of you please to help our family get him a safer and better 4-door vehicle.

This will make it easier for me to get him in and out of without hurting him. Right now I have a 2-door truck that I got to bend to get in so I don't hit his head and it's really hard for me because I am 5'9".

I have to be home with my son so I don't have the money to help him get a new vehicle. So if you can find it in your hearts to please help me and my daughter and especially my miracle baby, thanks!

We need grant for $10,000 to get a new good vehicle. Please and thanks. I live in Ft. Covington New York. Kristina.

Comments for Government Disability Grant To Help Mother With SBS Disabled Baby

Average Rating starstarstarstarstar

Click here to add your own comments

Mar 07, 2010
Rating
starstarstarstarstar
Try this
by: Paul

Sorry about your problems, but I will try to send you in the right direction. First, if you haven't yet, get him on disability. It will take about a year for them to deny you but you'll get a free attorney. After a month or so, write your Senator an e-mail about what's going on. Second, try the grants.gov site. Join the disability digest (www.thedisabilitydigest.com) as they send helpful tips and e-mails all the time. Good Luck and GOD BLESS. Hope you get the help you need.

Sincerely,
Paul

Click here to add your own comments

Return to US New York.