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Government Grants For Accident Disabled Man With Motor Neuron Disease

by Larry
(Melbourne, FL, USA)

I am a 54-year-old accident disabled man from Baltimore, MD now living in Melbourne, FL. I'm looking for government grants to help with expenses.

My father died in 1995. I relocated to Melbourne, FL for a job change in 1996. My mother also relocated from Baltimore, MD to Melbourne, FL with her 2nd husband in 1997.

In 2000, I married my second wife who has three children: a 16-year-old daughter, a 22-year-old son and a 28-year-old daughter.

I have several incurable medical conditions. At the age of 4, I began to limp from having psoriatic arthritis, a combination of psoriasis and arthritis. Both afflictions come and go. I currently suffer from both.

On May 24, 1977, I was in a traffic accident. I had a concussion resulting in a 2-day coma with a broken jaw, three cracked ribs and a paralyzed left arm.

I was told that there was no medical technology that could provide me with any motor function in my left arm. MRIs did not exist at that time and I was told that my left arm may or may not heal on its own.

The driver that hit me had no available funds, so we settled out of court for the amount of money that his insurance company would pay.

After two years of physical rehabilitation, I learned that my left arm would be permanently paralyzed. In addition, although I lost all motor function in my left arm, I still had functioning sensory nerves that would provide me with chronic pain for the rest of my life.

With the realization that I had to learn to live the remainder of my life with the use of only one arm and constant pain, I became profoundly depressed.

After five years of emotional and physical rehabilitation, I made a career choice based on my limited options.

I learned to live with chronic pain without pain medication so that I could go back to college and become an electrical engineer.

In 1985, I graduated George Washington University with a Bachelor of Science in electrical engineering and started my first professional job.

I continued to keep abreast of the latest medical technologies and underwent several extremely unpleasant electromyograms (EMGs) and nerve conduction studies (NCSs).

I eventually found a neurosurgeon with the expertise that could potentially help me regain at least partial use of my left arm.

She told me that my left arm could have been saved had she been contacted when the accident occurred, but that it was now too late.

Although I was able to maintain my career, my emotional life did not fare as well and I was unable to maintain any meaningful relationships with women.

My first marriage was not a happy one and ended in divorce after five years when I found out that she only married me for my money and that she was having an affair. Several years later, in 2000, I remarried.

In the fall of 2006, I noticed that I was also losing significant muscle mass and strength in my RIGHT arm. I desperately tried to find a way to salvage the use of my only remaining arm.

For several months, I suffered through more painful EMGs and NCSs to diagnose the new problem in my right arm.

On November 9, 2006, after an MRI revealed that I had degenerative disk disease in my neck, I had surgery to fuse several vertebrae in my neck (C4-C6).

Unfortunately, I did not regain any strength in my right arm. I then embarked upon a new search for a cure.

After visiting several experts, I was diagnosed with motor neuron disease, another medical condition for which no cure exists. My prognosis was that my condition would never improve, but that it could worsen.

Also, I was experiencing a lot of pain in my right arm. It was determined that I had a torn rotator cuff in my right arm and that surgery was not an option because I would not be able to keep my right arm immobilized long enough to heal due to the fact that I did not have the use of my left arm.

I also began experiencing pain, cramping, and twitching throughout my body. This was due to the loss of nerve function caused by the motor neuron disease, which made my muscles weak enough so that even normal activity was putting a strain on the muscles throughout my body.

Again I became profoundly depressed. I was given narcotics to manage the pain and benzodiazapines to manage the twitching and emotional stress.

I was also experiencing cognitive dysfunction causing a rapid decrease in my job performance. On April 14, 2010, I had an emotional breakdown and haven't been the same since. Two weeks later, my wife moved out.

I became unable to perform my job and went out on medical leave on May 5, 2010. After a month, I returned to my job and managed to function for about four months until I took medical leave again on October 15, 2010.

I was put on long-term disability and I was terminated from my job on October 15 2011. I am now considered to be "totally and permanently disabled" and unable to perform any job.

I am currently on long-term disability (LTD). I also receive SSDI but that is subtracted from my LTD benefits in accordance with the plan that was provided by my previous job.

In all, I receive up to 60% of the income I had while I was working. I am also on Medicare now and my medical coverage is not as good as it used to be.

Additionally, I must now pay others to perform many household chores that I can no longer perform due to the motor neuron disease.

I would like to receive a grant or additional benefits to cover my additional expenses.

Comments for Government Grants For Accident Disabled Man With Motor Neuron Disease

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Apr 16, 2012
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Thank you for the support...
by: larry goldstein

I would like to thank all of you for your compassion, understanding and advice. I know there are people worse off than myself receiving even less assistance than I. And I also know the reverse is true. That gives me even more incentive to fight the battle. I will let you all know if I make any progress that could help any of you. I'm convinced that no matter how cruel life appears, it's always a blessing in disguise. I wish all of you the best.

Nov 19, 2011
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Government understanding
by: Ken

Oh, I believe the governments know exactly what the disabled go through. They have so many different sectors that deal with disabled that they can keep you running in circles until you get dizzy. Just try one more time for another couple of years. You will eventually get back to exactly where you started. It's like a maze puzzle with so many starts that when you think that you are finding the finish, it's in the middle and it's really just a new start. Just think, if you have been at it for a while, go back and read your e-mails that forward you to another address that ends with .gov. They pass the buck more than a quarterback does a football. If you have a good story, go public, but you have to make sure you have a paper trail of e-mails to back it up. You have to protect yourself against prosecution. If you have anything that is slanderous, be prepared. Tell the congress person that you need answers, and where can you get them, and if he/she can verify that it is the right department, along with the proper sector of the department. Then you may get an answer if you forward his/her comment of direction. Keep attaching each comment from each e-mail you receive to the next address. In the end, you will probably just not get any more responses, but keep them and forward them to the President's office. Ask him why you can't get any answers from people that are voted into their positions. See you in the maze. Hope that makes sense.

Ken

Nov 16, 2011
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I don't believe the government understands what disabled individuals deal with.what disabled individuals deal with.
by: Fuller Caton

I'm not going to say I understand what your going through, but I do understand feeling left out to dry, by the men and women who are supposed to take care of this country and its people.

I suffered Traumatic Brain Injury in 2005 after a drunk driver hit me while I was walking. Thankfully I was in Charleston, home of MUSC, and was taken good care of.

I know how physical, speech, and occupation therapy feel. Can be really good, but unfortunately needed. I'm 34 and only get $674 a month to live off of. It's a sin. I don't understand it.

I posted a story on here looking for a grant also… a business grant. Maybe we'll get lucky.

I wish you the best of luck Larry.

Fuller Caton

Nov 16, 2011
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Home care
by: Ken

Hi Larry,

I found a site that may help you. They will offer a family member a financial incentive to help around the house and other activities. Copy and paste this to your browser:

http://www.agingcarefl.org/

Then scroll down to Home care for the disabled (HCDA), then follow through to requirement eligibility. Try that for a start.

Good luck,
Ken

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