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Grants And Advice To Help Narcoleptic Cataplectic Woman Pay Disability Costs

by Angel Dewitt
(Tempe, Arizona, USA)

I am a 35-year-old narcoleptic/cataplectic mother of four children: three girls and a boy. I also have two dogs (chiweenies) that I love just like my kids.

I was born in Tampa, Florida with French, German, Dutch and Irish roots. I now live in Tempe Arizona with my husband who works as a sound engineer.


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Disability Issues

I have been diagnosed with narcolepsy with cataplexy. This is a sleep disorder that makes it impossible for me to stay awake longer than two hours at a time. Cataplexy is a loss of muscle control when I have any strong emotion.

When the cataplexy manifests, I cannot walk, talk, hold things, stand or see right. This adds to the anxiety and depression that I also suffer from.

I have been on all types of meds all with little to no result. I now have high blood pressure due to the meds I was taking.

I also have very painful dental issues that leave me with frequent headaches and back pain that sometimes makes it impossible to do my daily routine.

Financial Hardship

I was denied SSI recently and need help with the appeals process. My husband is the only one working to support us and it's just not enough.

I have my two youngest children that desperately need clothes, shoes and school supplies that I cannot afford.

I do have insurance that pays for my meds and doctors' visits but does nothing for dental issues, car repairs, food shopping, rent and utilities, all of which we need help with now.

I cannot work due to my disability and the fact that I am not allowed to drive, along with the fact that my education is limited at best.

Income Efforts

We are currently on food stamps and state medical.

We get food boxes from churches and other agencies along with utility help but this help is only available once a year.

When we are short on rent my mother or sisters help out when they can but we have to pay that money back. That is just not possible now, as every penny goes to bills or food.

I would like to do more to help out but my computer is old and slow and my education and experience is limited.

Our car is on its last leg and I cannot work or drive due to my disability.

I need the help desperately. It is not just that I cannot give my children what they need. It is also very difficult to be a mother and wife and not be able to help my family.

A grant could change our lives for the better.

Specific Needs

I would like info and/or help with first time home buying grants, dental grants, clothing grants, utility grants, small business grants, car repair grants and grocery grants and programs.

Also I need legal help with the appeals process for SSI.

I would welcome any information that pertains to narcolepsy with cataplexy support groups.

Business Idea

I would like to get sound equipment so my husband and I can open our own sound company. We could double our current income with a sound business.

Not only would this grant help my family, but also we would also be able to employ at least one other person right away as this business involves heavy lifting and long hours.

My disability prevents me from helping out with these aspects of the business. My part would more involve customer service and scheduling work appointments.

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Dec 24, 2015
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An update
by: Angel

Hello all and Merry Christmas to everyone. My situation hasn't changed much since my posting and I'm still looking for help and support. I would love to find out more about the narcolepsy support group here in town. Please post the informatin here. Thank you and God bless!

Nov 22, 2015
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I can relate
by: Mary

I was diagnosed 4 years ago and have had narcolepsy for at least 11. My husband left me before the diagnosis and that has made my life challenging to say the least. I have 3 children and after all these years I am now able to work full time.

I would love to share with you what I have learned and what I do to help myself remain strong physically and spiritually. It has been a slow process and too much to write here.

However, I live in Scottsdale Arizona. There is a support group here in the valley, although I have not attended yet.

I will say this though. Ignore all the negative things you read. Focus on the good; avoid words like "I can't." Speak good into your life and your families. If you have never prayed to God, now is the perfect time. Through His Grace our weakness becomes strength. God bless you and yours.

May 18, 2015
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Follow Up
by: SheilaKay Paris

Hi Angel,

I was so saddened by your situation. It's been a while since your story was posted so I was wondering if you were able to get the attorney and refile for your disability?

If not, I have a great resource for you that Don, here, recommends also. Go to this link, and at the bottom click to join (it's also free):

Disability Digest

Brian Therrien also has a passion to help the disabled and he has connections to those who can help you with getting your award if you still need it, plus he offers all sorts of other help.

Give him a try and don't forget Don's Workbook, it's a treasure trove of help too. Just get in there and dig in.

Keep us posted on how you are doing, okay?

Sheila

Mar 28, 2014
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Stay Strong
by: Anonymous

Wish I could help. :) Your story is sad. Just stay strong. :)

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