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Hard Working Parents Need Government Grant For Help With Down Syndrome Child

by Jean Hawker
(Fall River, WI, USA)

Caydence, Whose Parents Need Help

Caydence, Whose Parents Need Help

My son and his wife are high school sweethearts. They were together for more than nine years before they decided to get married.

Once married, they opted to not have children immediately, but rather, obtain a home and make a good environment for their child/children when they decided it was time.

Now they're badly in need of a government grant or any other assistance to help with their Down syndrome child.

Unfortunately, my daughter-in-law has a physical problem that was not detected early in her first pregnancy. The first daughter died in the womb due to a blood clot in the umbilical cord. She was almost eight months along, and Kaitlyn was gorgeous! We buried her, with lots of emotion and love.

My son and his wife decided to try again. This time my daughter-in-law knew she had the problem, and had to give herself shots in the stomach three times a day to fight off the blood clotting disease she now knew she had. Six months into the pregnancy, the doctors found heart problems with the baby.

Because of these problems, it was 90% probable the baby would have Down syndrome. My son and his wife decided not to do the test to determine Down for sure, feeling this was their child and would be loved regardless of any disability.

Caydence was born with Down syndrome. She is a beautiful child and loved more than God would have ever imagined. However, because of her heart condition, my daughter in law had to quit her job to care for Caydence. She cannot go to daycare since she has a feeding tube.

So, bottom line, my son is working three or more jobs trying to finance himself, his wife, and his adorable daughter. Their house is in need of repair, roof, etc, which, if they could both work would have been handled.

Because of their age when they bought the house, they were required to get the PMI (Private Mortgage Insurance), which involves a huge monthly payment. Now, because of the economy, they're not able to have the home assessed above the 20% needed to rid themselves of the PMI payment.

During all of this, Columbus, WI, where they live, had a major flood last year. This affected their home. My son, always resourceful and optimistic, cleaned and dried his home alone.

I am doing this because of my love, and respect for how they're handling everything. They need financial help, not for Caydence as much as personal finances because of Caydence.

There is only so much anyone can handle, and because they've struggled for years, I need someone to help them. Unfortunately, financially I am not capable.

Please, consider them as a candidate for a grant! Anything would be appreciated. A government grant or any form of assistance would be so helpful.

Comments for Hard Working Parents Need Government Grant For Help With Down Syndrome Child

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Jul 24, 2011
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Good Luck and My Prayers
by: Anonymous

I have read the other posts and realize our stories are similar to everyone else's. Good luck to you and your family.

Feb 17, 2011
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God bless
by: Anonymous

I have a child with Down syndrome that had open-heart surgery at 4 months old. I applied for a grant through the hospital and after months of wait I was granted the money. There are various organizations that provide services for your grandbaby. Also SSI is an option to apply for. God is with you and his hands are working even when we do not see them move.

Jan 02, 2011
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SSI and MA
by: Anonymous

My husband and I were both married previously and have children from other marriages. We both decided that we were done having children, and decided to just spend the rest of our lives enjoying each other and not marry again. Four years ago we were blessed with our most precious gift- a daughter with Down syndrome.

We then decided to marry after her birth. When I talked to the case manager she told me that we should not have married. Now it would be more difficult to get assistance for her. Imagine that? a county person telling me not to get married to get on the system.

Wow this world is crazy. I myself being a nurse thought how could this be? She is permanently disabled, and my husband and I had both had jobs since we were 16. Well I am here to say we have not gotten a dime from anyone.

My daughter also has a heart defect, and is hearing impaired, among other medical things. I have also had to quit my full time job to care for her and we still are not eligible for anything. My daughter's school is very upset with us because she is not on MA but we cannot just snap our fingers and put her on it. She is not eligible for SSI according to our gross income, and we do not make more than $60,000 a year.

We pay $10,000 for health insurance premiums not including deductibles and max out of pockets, $8,000 in child support for his son and all of this is taken off the top before his check comes home.

Our government is messed up, They can spend millions to fight a war that is not ours, they can send millions in aid to other countries, they can give food stamps and provide medical insurance to all of the immigrants, but legally born US citizens that are born disabled with hardworking parents cannot get help.

We have three children, 15, 11, and 4. Our oldest is already worried about college because even though he is an A-B student he knows that chances are he will not go to college because of our debt. He tries very hard to get Straight As but he has ADHD and it is difficult at times for him to study. My worst fear is that he will not have the chance for a good education because we will not be able to send him.

Our house is over a hundred years old and falling apart, our cars have well over 230,000 miles, and we have bill collectors all over us. I wish I knew the answers, but I can say that it never gets easier. There is never enough money, and the only peace that I know is when my daughter's infectious laugh warms my heart.

I wish you the best of luck and I only wish some one could hear our prayers. I will pray for your family.

Heidi
Minnesota

Jan 31, 2010
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Insight
by: Anonymous

I was looking for help for myself. I have been an incredibly hard working person. When my children were young I worked 18-20 hrs a day. I was looking for help to retire with my husband, who is 13 years older than me. After reading about your family, I hope that the help comes to you. I would love to be able to help you and your family. There is nothing more precious than a Down syndrome baby, but they do require special parents, and resources to help and relieve those parents. I hope that your family is able to receive that help. My heart and soul goes out to you. I hope someone comes through for you.


Nov 02, 2009
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Government Assistance
by: Rachale Kelley

Have they applied for SSI? Does WI have a Health program for children? Also, Ohio has a resource center for people with disabilities.

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