Caring Wife Seeks Government Grant For Wheelchair Van For Disabled Husband
by Rachel Gilpin
(Port Orange, FL, USA)
This is not someone in a vegetative state.
My name is Rachel Gilpin and I am writing on behalf of my husband Maurice and our children.
Maurice had a brain aneurysm almost five years ago. He has had three brain surgeries, has been on a breathing vent three times and has fought off countless infections.
And let's not forget the stage-four bedsores that we are still dealing with. BUT he is still here by the grace of God, his strong will and my commitment to our family in getting us through this.
Maurice has spent these last several years fighting for his life in different nursing homes. He's been in and out of hospitals where everyone but his family says that he is a vegetative state and I need to let him go.
They say that he'll never recover from this, or that I'm young and that I should give up and go on with my life. Maurice is 54 and I am 35 years of age. It has been one battle after another. I refused to give up on him and our family.
So June 1, 2009 I decided I could do this myself. I have watched the nurses care for him over the years and felt I could do this also. He was finally stable enough bring him home.
Granted he's still on a feeding tube, several medications throughout the day, can't walk or talk, BUT he can communicate with you.
Maurice has thrived since he has been home. It is a joy to watch.
Some days he manages to bring me to tears of joy to see he does something in therapy that everyone in the nursing homes said that he would never be able to do again.
Not all of Maurice's medical expenses are covered through Medicare so that requires a lot of out-of-pocket expenses, which makes it hard to purchase a wheelchair accessible van.
We are confined to our homes because I am unable to get Maurice out and about. Every time Maurice needs to go to the hospital I need to call the ambulance, which costs me $646.19 (not covered) to take him around the corner to the hospital.
I have to pay someone to sit with him if I need to run errands. He would benefit from being out in everyday life again.
We are working so hard as a family to overcome these obstacles in our life, but it is very difficult. So we are searching for any kind of help that might be out there to assist my family with this van.
I have therapy notes that all say the same thing... that he is doing so well and he needs to be exposed to everyday life as much as possible and having a van would help achieve this for our family.