Disability Grant For Myositis Disabled Michael To Buy Single Story Home
by Michael McKeown
(Meadville, Pennsylvania, USA)
My name is Michael and I am 45 years old. My wife Michelle and I have two boys ages 13 and 12. We have a small home in northwest Pennsylvania.
My wife is a first grade teacher at the Christian school that my kids attend. I enjoy spending my free time gardening and singing in a southern gospel quartet.
In 2009, after breaking my arm I noticed that my grip had not come back in my hand as I thought it should.
Later, I began to notice that it was becoming increasingly difficult to climb stairs. By 2012, I was crawling with hands and feet to climb stairs.
Since I did not have insurance I did not go to a doctor and get it checked. By 2013, my wife finally told me to get it checked even if we had to pay out of pocket.
After a muscle biopsy, it was determined that I had developed Inclusion Body Myositis. This disease is characterized by a weakening and wasting of skeletal muscles in the arms and legs.
My neurologist tells me that each year my muscle loss will be greater and that I will be in a wheelchair within 15 years. There is no treatment and there is no cure.Financial Hardship
Money has always been tight. We live paycheck-to-paycheck, setting money aside for emergencies if and when we can.
We keep our expenses to a minimum, but money is still very tight. Because of our low income, school bills have been deferred several times.Income Efforts
I am currently receiving SSDI assistance.
My wife also works as a tutor in the summers to pick up a little more money.
I work as much as I am able as a mental health counselor, but not enough to adequately provide for the family.
I learned to design floral arrangement many years ago and have recently been going to craft shows with my arrangements to try to make extra money.
As I slowly become worse, it becomes more difficult to set up tables and display arrangements without help.Specific Needs
What we really need is a house that is on one level. Since stairs are a major issue for me, the house that we are in is no longer suiting our changing needs.
I am looking for home buying grants, benefits and advice that will lead me to the next right step towards meeting the challenges that are in front of us.