Mom Seeks Government Grant Help For Equipment For Disabled Grandson
by Louise Wright
(Rome, GA, USA)
I have four teens in the home. They are all in high school. I became the permanent caregiver of my two-year-old grandson one and a half years ago.
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My grandson was born early weighing in at one pound. Four of his first nine months were in the neonatal intensive care unit (NICU).
He was born with a hole in his heart, chronic lung disease, impaired hearing, rickets, seizures and neural brain damage.
He is two and cannot sit up on his own nor stand. He has no ability to hold his cup or bottle; however he knows when someone is around him. He has nurses for 16 hours a day.Financial Hardship
I had to quit my job to take care of him, when I became his caregiver. I am on fixed income.
I need a handicap accessible van and wheelchair for him for travel. He goes to the doctors every month, some 80 miles from home. Because of his disabilities there are no doctors in this town to service his needs.Income Efforts
I do get money from SSI for him.
Friends and family help with sitters.
All of my employment has stopped. I am unable to work because when the nurse leaves someone needs to be with him. He is a hands-on child 24 hours a day because he could have seizures.
Churches were the main focal point, but they say they do not have money; however they do give food boxes.Specific Needs
I need equipment for him. Because of his other equipment he has in the home, which runs on electricity, my light bill is enormous, from $300 to $700 a month.