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Woman Disabled By Reflex Sympathetic Dystrophy Seeks Debt Relief

by Mimi
(Gardnerville, NV, USA)

Eleven years ago, I was disabled with a debilitating and degenerative neurological disease called Reflex Sympathetic Dystrophy. Now I'm disabled by debt and I need relief.

I have been sick more than half my three children's lives and it breaks my heart.

It's mostly invisible, so to look at me you would think I looked okay, but didn't have the best balance, get fatigued way too easily and might even think my faculties are questionable.

It's because this disease manifests in so many ways, from myoclonic jerks and dystonia, to lesions, severe burning and stabbing pain. In fact it rated TWICE the pain of Stage 4 cancer! Yet no one knows about it.

I have wiped out my life savings on medical bills, have had to sell personal items and basically only have the roof over my head. I don't want to lose that, yet I am at a loss of what to do.

My home needs repairs. I live in Nevada, where the foreclosure market is very bad. I'm scared to death and the stress is only making me sicker.

I have always given to my community, by mentoring, helping the elderly, and giving to those less fortunate. I need hep now and do not know how to get it?

Doors are constantly shut in my face, my mortgage company keeps putting off my modification, and I am destitute. What do I do now? I want to stay in my home. It's all I have!

I have done everything right my whole life, and now I feel frustrated and scared! I'm alone, and have no one. My husband left the night before my first brain surgery 10 years ago. I have had 23 other surgeries since then.

I'm a fighter. I want to fight, but I don't know how to fight the system! Please fight this fight with me!!! Kindly, Mimi.

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Aug 03, 2012
A disease you wouldn't wish on your worst enemy - I know!
by: Lori

Are you getting disability benefits? If not, you are certainly entitled, as RSD is on the list. I know all too well your frustrations. I can't get a modification either after four years of fighting now. And, you are certainly right in the fact that stress makes it worse. I also know how frustrating it is to have a disease that nobody seems to know about. I worked as an RN for 10 years prior and had never had never heard of it, much less had a patient with it. But, this may be finally where it is to your advantage. I just saw this evening that The National Organization of Rare Disorders apparently gives out a lot of money. There was a page that listed the disease foundations that were the best for help. RSD is listed by them as a rare disease. In fact this year on National Rare Disease Day, MSN ran a story with 10 rare diseases. The very FIRST one featured was RSD. I was thrilled to see the media getting information out to the public about it. You aren't alone. Don't give up hope. Without it, there is nothing left. Wishing you the best.

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